What's Going On...

Busy tends to be our main deal now... It just never seems to end! So, here's the brief update!

Shortly after my last post Sonya came down with pneumonia and fought it hard for 8 weeks! She just couldn't shake it! People with OI have a harder time fighting off respiratory illnesses and since respiratory failure is the leading cause of death followed by trauma for people who have OI, you can imagine how terrifying this experience was for us. Her cough was awful, but worse was listening to how she was struggling to breathe. It was awful! She got through it though, thank God!

Due to having pneumonia her scheduled surgery for her arm rodding was pushed back.... TWICE! She had to be absolutely clear before her surgeon would proceed! It worked out nicely though... We were in the hospital for a whole week, starting off with PAM!

Sonya had 4 of her OI friends with her in treatment this time around! It was fantastic! The time goes by much faster with friends! We also discussed port removal with her doctor and we are thinking within a year or two she will have it removed. We'll have to see how she does with peripheral IV's first.

Watching Spongebob Movie for the millionth time!

Here are some arm pictures pre-rodding. That's not her elbow, it's her bowing.

Surgery went well! She had her left radius and ulna (lower arm) rodded and her right tibia (lower leg) rod revised again. The tibia rod came unpinned from her ankle and retracted back up inside it's outer telescopic part leaving half of her leg unprotected. Sonya's doctor had to go in at her knee and tap it back down and re-pin it. We have an upcoming appointment this week to see how everything is healing.

We have also noted how Sonya's feet, despite her wearing braces, have been getting worse. Her left arch is completely collapsed and she walks on the inside of it... almost on her ankle. Her right foot seems to be retracting back to it's club, which may warrant another surgery. We'll have to see what her doctor thinks when we go in this week.

Who could say "no" to a face like this?!

She sure can turn on the charm!

We had our annual cookie day at my mom's house, baking 7 different kinds of cookies and I don't know how many batches! Let's just say the oven went on at 9am and didn't get turned off until 1am! The kids didn't even know who they were when I gathered them up to go home! Good times!

The annual Christmas photo shoot this year didn't go as I initially planned....

Too much sun in their eyes as they lay on the fake snow.

I did manage to snap some good ones along the brick though! Sonya's silly faces are priceless! The first one was our Christmas card for this year!

We all had a fantastic Christmas and New Year! I'll hopefully get around to posting some more pictures from the holiday soon and I'll be sure to update when Sonya gets her cast removed too!Well, that's all for now! Hope everyone had a wonderful holiday too!!