Hi everyone!
We went down to Kennedy Krieger Institute's OI Clinic in Baltimore Maryland today to see Dr. Leet. She looked over Sonya's x-rays and said that given the fact that Sonya has not fractured frequently in her legs since birth and her only having a few PAM treatments, she is not ready to be rodded. She said that she definitely is a good candidate for rodding as her femurs and tibias are very bowed, but she needs to have more PAM first! So we are waiting. She also cleared up the C1 C2 instability debate. Dr. Kruse is saying there is NO issue while Dr. Ain feels he sees something there. Dr. Leet says that when Sonya is old enough to understand how to move her head from chin resting on chest to eyes gazing at the sky positions in a smooth transition and do so on command then they could perform a CT scan and get a better idea of what is going on there. We are all hoping it is not a Basilar Invagination issue. So, guess who's going to start practicing this smooth transition of positions?!
In the meantime Dr. Leet feels that Sonya should be getting Physical Therapy 2-3 times a week plus swimming time. She also says that Sonya is ready for a pediatric walker and that she could use some clam shell AFO's for bracing her legs. We will be calling our Physical Therapist over at duPont tomorrow to get the ball rolling on all of this! I'm so excited for the walker! Sonya has been starting to cruise (taking 3 or 4 steps) furniture and has been pulling up to stand at even higher pieces of furniture in our home.
We will be having Early Intervention coming out to our home on the 19th of November for an evaluation so hopefully we can get the 2-3 days a week of Physical Therapy through them and that would mean no traveling for us!
I am happy that we sought out a second opinion on rodding surgery. I was disappointed that our orthopaedic surgeon at duPont wasn't even willing to discuss rodding with me until Sonya was 3 years old. Now that I know the reasoning behind his not wanting to rod her until later, (Sonya's bones are just not strong enough to take on that surgery yet) I feel better. Thank you everyone for your well wishes on this trip!!!
I know you all need your Sonya fix! So here she is in all of her climbing and standing glory!
.JPG)
12 comments:
Oh my goodness Mommy - Sonya is climbing everywhere! I really liked the pediatric walker we had for Caden. Let me know if you want more info on it. Glad you got clarification on your most recent doctor visit!
So glad that you're feeling better after getting this second opinion. Sonya is quite the climber! Love the pictures as always!
Your little monkey is just too funny! Nothing is going to stop her!! So glad you are happy with the results from your visit. Early Intervention has been wonderful for us...Seamus has been enrolled since age 2 and he receives PT, OT and Speech twice weekly. They do his sessions at school now, and his therapists are all like part of our family. Hopefully you will have a great experience like we did!
So is doing the same thing, climbing everywhere & in toy box. LOL Sarah is climbing on the walls & furnitures & we had to chase her down to tell her no. LOL ~ Dawn ~
So glad to hear that you're please with how the appointment went. What it is about climbing into baskets of blocks and sitting there? My girls did that too, it can't be comfortable! She's definitely a cutie, as always!
So darn cute! I really hope that you are able to get the PT without traveling!
Melissa, Sonya cracks me up. She loves to climb in and sit in everything, just like Nate. She is such a cutie!! Glad to hear that you got some definative answers from the doctors about what Sonya needs and when. Nothings worst then knowing you should have done something long ago. Hope PT goes well.
Wow she is really climbing into everything! She is determined that nothing will stop her. I am excited about the walker too. That will be awesome for her. I am glad that the appointment went great and you are at ease about the rodding surgery. She is a super duper cutie!
I'm so glad that you got answers this time! We're sorry that we missed you guys! Simon was really looking forward to seeing his sweetheart!
I hope your Early Intervention appointment goes well! We've been happy with the services that Simon has received through EI. That is great that Sonya will be getting a walker!
Look at Sonya go! What a little climber and so determined! Adorable pictures, as always! Simon sends her hugs!
Sounds like you've got a lot of ahead, but it must be nice to have a plan. What a cutie, just adorable! Cole has the same play table a his G.ma Cameron's and LOVES it!
Glad you got some additional info that makes sense! A walker will be great for little miss into everything! Love the new blog header picture too! Oh, I've been making Bento boxes for Taylor's lunch and she loves them, thanks for the idea!
Great news that you got some clarification. Early intervention is great. Aidan gets Speech and OT through our local school district now. Sonya certainly keeps you busy by the pictures posted...there is no stopping her.
Post a Comment