I wanted to share with you all a webcast that I watched last night "Building Self-esteem in Children/Teens with OI". The webcast has been saved and can be seen at the link below. It is approximately an hour long discussion given by Kara Ayers whom herself has type 5 OI. Kara is very informative on the topic and also has her own website where she discusses the broad spectrum of disability issues. Currently Kara is pursuing her PhD in Clinical Psychology with an emphasis on children with chronic illness and disabilities, specifically children with OI. She is finishing her dissertation on the psycho-social effects of growing up with OI. For the POLP reading this post, some of these topics can be very helpful for you and your LP as well! Not all of this discussion is necessarily directed to just children and adolescence living with OI, but can be applied to many other children with varying abilities who spend a considerable amount of time around hospitals and whom have many different appointments with varying specialists frequently.
In Kara's webcast she discussed some helpful children's books. My mom is planning on getting these books for Sonya for Christmas. I will post a review on these books with my thoughts in a future post!
Kara's Website : http://www.karaayers.com
Link to Webcast : http://www.ustream.tv/channel/building-self-esteem-in-kids-with-oi
Enjoy!!!
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4 comments:
Thanks! This is great information! To tell you the truth I am so wrapped up in little baby with OI I haven't ever thought about what it is going to be like when she is a teenager! I guess it's a good thing that her dad will have it- and he'll be able to relate to her a lot. It definitely would not hurt to get as prepared as I can before that time comes.
-Mary
Thanks for sharing - that was an informative webcast! I'll have to check out her blog yet too!
Kara seems like an amazing woman! What a fantastic resource.
Melissa, I will definitely watch the video but I don't know how I got sooooo behind in your blog. I have missed so much-like the amazing photo shoot from the pumpkin patch! My gosh! The girls get prettier and prettier everyday. You will be beating the guys off with a stick in about 7 years. I just love all the pictures, but my favorites are the ones with you and the girls. Such a great picture. And tell your girls the emu scares me too-that is a strange bird.
Love the little doll you sewed for Sonya. It's so cute. You are so creative!
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